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Ellianna Grace Foundation

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Congenital Heart Defects occur in 1 out of 100 births in United States.
It is the #1 cause of death in children under the age of 1 compared to ALL childhood cancers combined.

Our Kids

Today, Ethan is 3 years old and doing great.  He has had his struggles and still sees doctors and therapists to help him with his needs and delays.  Overall, he is just a 3 year old little boy who loves to play, run, climb and spend time with his dog Zoe.  His smile is contagious and his spirit is strong.  We are eternally grateful for Ethan and for this journey.  We are better people because our life has been blessed by our special boy.

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Parent-to-Parent

Parent Support for Congenital Heart DefectWe are parents just like you. We are excited about welcoming new children into our families, we want the best for them and we are devastated that our children have to endure this difficult road. However, we have found tremendous hope and promise on this journey. We want to share this hope with you.

We have found it very helpful to talk with other parents and learn how they cope with their child’s heart disease. We have also been encouraged to learn about the many children who are living successfully with their heart defect. This is a difficult journey to walk alone, and we know that the advice, resource and encouragement of other families provide the inspiration needed to continue.

If you would like to be connected to other families who have undergone the fetal cardiac intervention, you are invited to join EGF’s online support group. Or if you are interested in talking one on one with another family please contact us and we will be in touch with your soon.